Include funding for rare disease treatment in BJP manifesto: PAGs

Patient advocacy groups request PM Modi and Rajnath Singh to include sustainable funding for rare diseases patients in BJP manifesto. Emphasis on specific diseases like Gaucher, Pompe, and MPS, along with the need for long-term therapy and equal support for all notified conditions under NPRD 2021.

from Delhi News: दिल्ली समाचार - Latest Delhi News Headlines & Live Updates from Delhi - Times of India https://ift.tt/DuQwpAh
via IFTTT